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Washington releases FAQs for My Health My Data Act
On June 20, the Washington attorney general published a series of Frequently Asked Questions (FAQs) related to the My Health My Data Act—a comprehensive health privacy law that provides broad restrictions on the use of consumer health data (covered by InfoBytes here). The FAQs include information on the law’s effective dates and applicability. According to the AG, “all persons, as defined in the Act, must comply with section 10 beginning July 23, 2023. Regulated entities that are not small businesses must comply with sections 4 through 9 beginning March 31, 2024. Small businesses, as defined in the Act, must comply with sections 4 through 9 beginning June 30, 2024. For sections 4 through 9, the effective dates apply to the entirety of the section and are not limited to the subsections in which the effective dates appear.” Additionally, the FAQs clarify that a business that is covered by the Act must provide a link to its consumer health data privacy policy on its homepage.
The FAQs also address a potential conflict between Sections 6 and 9 of the Act regarding the right to delete and consumers’ authorizations to sell data, respectively. Section 9 mandates that any person, not just regulated entities, must obtain consumer authorization before selling or offering to sell their data. Both the seller and purchaser are required to retain a copy of the authorization, which may contain consumer health data for six years. However, Section 6 stipulates that consumer health data should be deleted from a regulated entity’s network upon the consumer’s request. The FAQs advise that in cases where a consumer requests deletion under Section 6, any authorizations stored under Section 9 must be redacted to eliminate any information related to the data that was sold.
Nevada enacts health data privacy measures
On June 16, the Nevada governor signed SB 370 (the “Act”) to enact provisions imposing broad restrictions on the use of consumer health data. The Act is intended to cover health data and persons or entities not covered by the Health Insurance Portability and Accountability Act. The Act defines a regulated entity as a person who conducts business in the state of Nevada or produces or provides products or services that are targeted to consumers in the state that “determines the purpose and means of processing, sharing or selling consumer health data.” Exempt from the Act’s requirements are government agencies, financial institutions and data that is collected, maintained or sold subject to the Gramm-Leach-Bliley Act and certain other federal laws, law enforcement agencies, and third parties that obtain consumer health data from a regulated entity through a merger, acquisition, bankruptcy or other transaction, among others.
The Act increases privacy protections, and outlines several requirements, such as (i) entities must maintain a consumer health data privacy policy that clearly and conspicuously discloses the categories of health data collected and specifies how the data will be used, collected, and shared (including with third parties and affiliates); (ii) entities must obtain voluntary consent from consumers prior to collecting, sharing, and selling their health data, and are required to provide a means by which a consumer can revoke such authorization; (iii) entities are restricted from geofencing particular locations to collect and sell data; and (iv) entities are required to develop specific security policies and procedures. Consumers are also empowered with the right to have their health data deleted and may request a list of all third parties with whom the regulated entity has shared or sold their health data. The Act details prohibited practices and outlines numerous compliance elements relating to access restrictions, responding to consumers, and processor requirements.
Furthermore, a violation of the Act constitutes a deceptive trade practice. While the Act does not create a private right of action, under existing law a court has authority “to impose a civil penalty of not more than $12,500 for each violation upon a person whom the court finds has engaged in a deceptive trade practice directed toward an elderly person or a person with a disability. Additionally, under existing law if a person violates a court order or injunction brought by the Commissioner of Consumer Affairs, the Director of the Department of Business and Industry, the district attorney of any county in the state or the attorney general, “the person is required to pay a civil penalty of not more than $10,000 for each violation.” Willful violations may incur an additional penalty of not more than $5,000, as well as injunctive relief.
The Act is effective March 31, 2024.
Washington State passes new health data privacy measures
On April 27, the Washington State governor signed HB 1155 to enact the My Health My Data Act—a comprehensive health privacy law that provides broad restrictions on the use of consumer health data. The Act is intended to cover health data not covered by the Health Insurance Portability and Accountability Act. The Act defines a regulated entity as any legal entity that conducts business in the state of Washington or engages with Washington residents that (alone or jointly with others) “determines the purpose and means of collecting, processing, sharing, or selling of consumer health data.” Government agencies, tribal nations, and contracted service providers that process such data on behalf of a government agency are exempt. The Act increases privacy protections, and outlines several requirements, such as (i) entities must maintain a consumer health data privacy policy that clearly and conspicuously discloses the categories of health data collected and specifies how the data will be used, collected, and shared (including with third parties and affiliates); (ii) entities must obtain consent from consumers prior to collecting, sharing, and selling their health data; (iii) entities are restricted from geofencing particular locations to collect and sell data; and (iv) entities are required to develop specific privacy disclosures. Consumers are also empowered with the right to have their health data deleted. The Act outlines numerous compliance elements relating to access restrictions, replying to consumers, and processor requirements. The Act also specifies the types of information and documents for which the Act is not applicable. In addition, the Act provides a private right of action to consumers and grants the state attorney general enforcement authority as well.
The Act is effective July 23. Regulated entities must comply by March 31, 2024, except for certain provisions applicable to small businesses that have until June 30, 2024 to comply.